Historic milestone for persons with ASDD. UN Recommendations

Historical milestone for ASDD. UN Recommendations for the Government of Spain

 The Committee on the Rights of Persons with Disabilities, which periodically assesses the implementation in countries that have ratified the International Convention on the Rights of Persons with Disabilities, yesterday published its conclusions on the application in Spain with the Recommendations for the Government from Spain.

 In them, after the participation of the ALPE Achondroplasia Foundation in the 21st session of the Committee that took place at the UN headquarters in Geneva between March 11 and April 5, 2019, the Committee has collected the dwarfism in relation to to two of the articles of the Convention, 8, Awareness, and 9, Accessibility. The recommendations that ALPE exhibited as civil organization in the review of Spain on March 18 have been fully reflected.

 It is a historic milestone for people with ASDD (Achondroplasia and other Skeletal Dysplasias with Dwarfism) due to the importance and weight of UN recommendations, especially among countries that, like Spain, have ratified the Convention and have committed to implementing it. that is not a wet paper.

 The Convention can be read at this link: https://www.un.org/disabilities/documents/convention/convoptprot-s.pdf 

 And the final observations on the third and fourth periodical reports of Spain, can be downloaded from it: Concluding observations on the combined second and third periodic reports of Spain: https://tbinternet.ohchr.org/_layouts/treatybodyexternal/Download.aspx? symbolno = CRPD% 2fC% 2fESP% 2fCO% 2f2-3 & Lang = en They are in English and will not be officially translated by the UN for two months, but, for the time being, enough, what concerns us: 

Awareness-raising (art. 8)

  1. The Committee is concerned about:

(a)    The limited change in social perceptions about persons with disabilities achieved by awareness raising programmes and their lack of focus on the dignity and rights of persons with disabilities;

(b)    The continuing stigmatization of persons with psychosocial disabilities in the media as well as by pharmaceutical industries as dangerous to society;

(c)     Persisting negative stereotypes and degrading portrayal of persons with disabilities, such as persons with dwarfism in bullfighting comic shows in mainstream media channels.

  1. The Committee recommends that the State party take measures, in partnership with self-advocacy organisations of persons with disabilities, to design, launch and maintain public awareness and media campaigns aimed at eliminating negative stereotypes towards persons with disabilities, promoting the recognition and respect of their rights and encouraging positive perceptions and enhanced social awareness about them in society.

Accessibility (art. 9)

  1. The Committee is concerned that currently only the 0.6% of buildings in the State party are accessible, despite Spain’s commitment to fulfil universal accessibility by the end of 2017. The Committee is concerned that measures taken to ensure universal accessibility, particularly for private buildings, have been insufficient or not effective. In particular the Committee is concerned about:

(a)    The ineffectiveness of policies regarding accessibility in public administration, the absence of sufficient budget allocations and lack of mandatory accessibility criteria in public procurement at all levels; 

(b)    The lack of progress made in implementing accessibility measures for persons with disabilities, particularly persons with intellectual or psychosocial disabilities, blind, deaf, persons with autism or with dwarfism.

We look to the future with hope and congratulate ourselves for this success. We encourage organizations of other countries to submit their demands to the Committee when their turn comes.