We provide information, give support, sponsor medical advice and create bonds for families and children with achondroplasia and other forms of rare bone dysplasia
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If you differ from me, my brother, rather than do me harm, you enrich me.
Antoine de Saint-Exupéry
Adaptations
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>> Adaptations for the the school chair (ALPE, 2012) (pdf)
>> Ideas on how to make school work easier. Accessible folder (ALPE, 2012) (pdf)
>> Speech therapy for children with achondroplasia (Ojeda B,2012)(pdf)
>> Letter on achondroplasia for classmate parents (ALPE, 2012) (pdf)
>> Letter for the school professionals (ALPE, 2012) (pdf)
>> Skeletal dysplasias life stages - a Framework for Little People, Families, and Healthcare Providers (Montuori L et al., 2011)(pdf)
>> Achondroplasia students: guidelines for school (Aprosuba, 2010) (pdf)
>> Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health: the Achondroplasia Personal Life Experience Scale (APLES) (B
>> Understanding, Assessing and Improving Health-Related Quality of Life of Young People with Achondroplasia- A Collaboration between a Patient Organization and Academic Medicine (Witt S et al., 2017)(web)
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