BIBLIOTECA

Consensus Paper

EU Consensus document For an EU that cares about Achondroplasia and other Skeletal Dysplasias’

The document compiles a set of policy measures aimed to break down the barriers faced by people with Skeletal Dysplasias in Europe. Was made in 2021 by the organizations of the SDAlliance, from seven countries, and constitutes a milestone, a great effort of collaboration and can and must be used to back social and political activity in Europe and in other countries.

Participación de organizaciones de ADEE ante la Convención sobre los Derechos de las personas con Discapacidad.

Rosa Idalia Aldana
Experta independiente en la Conveción sobre los Derechos de las Personas con Discapacidad de la ONU. Fundadora y Presidenta de Pequeños Gigantes de Guatemala.